Root Definition

Provides systems to enable the safe sharing of care data and related operational data for the health and social care system in England, by creating and/or commissioning such systems, in order to deliver safe, effective care, monitor care delivery, and plan improvements in care.

That includes:

Collecting data from the health and social care system in England, and sharing it in a controlled way with other parties in the system.
Collecting some specific patient-level data for the NHS for use in care delivery and providing systems to access that data in a secure way.
Producing national data standards to facilitate data sharing, with the HSCIC and more widely between different parts of the health and social care system.


Government agencies with a need for information on the health and social care system and organisations that need data for commissioning health and social care services,
Health care organisations that need data to support treatment of patients.
Organisations that need data for research.


Health and social care providers, who supply data to the HSCIC.
Commissioners of data collections.


Transforms requirements from NHS England and the Department of Health into standardised data collections.
Transforms professional knowledge into data standards.
Transforms care data from multiple systems into electronic health records (e.g. summary care recordable).


The HSCIC considers itself as the main custodian of national data for the health and social care system in England. As such, it has powers to collect data, and responsibilities around handling that data.


The Department of Health who provide funding.


Care provider organisations, who often collect data in a variety of forms, to varying degrees of accuracy and using multiple and sometimes conflicting standards.
Regulatory bodies, particularly the Information Commissioner's Office.
Professional bodies, who have multiple needs no expectations regarding data.
Citizens and representative groups, particularly those with concerns about data use and privacy.
Government and governmental bodies, including parliamentary committees that scrutinise HSCIC.
National and international standards organisations, such as ISO, IHTSDO, WHO.

Relevant Subsystems

Standardisation Committee for Care Information
UK Terminology Centre
National Classification Service
NHS Data Dictionary

Contribution to the problem situation.

The current data standards do not provide an adequate means for recording MBIs - for example MBCT is not recognised by any of the systems supplied by the HSCIC.
Only the IAPT dataset has a field for recording "Mindfulness" as a therapy type, which is vague. At present the number of records with this value are negligible.
The HSCIC collect data using multiple standards; therefore to update the collections it may be necessary to update multiple standards.
Some data standards may not be equivalent or compatible, making it difficult to combine data meaningfully.